This is the story of Sn.
Sn is 11 years old, home schooled, lovely and cheerful because she knows Jesus loves her.
But Sn has the body of a 2year old. All day long, she sits on her bed, or if she goes out of the house, she needs to be pushed in a pram. She has a big big pram to herself, because all the extra space in the pram is needed for an oxygen tank and a generator to generate the oxygen for her to breathe.
If she needs to shower, she needs to remove her oxygen mask, and rely on a small tube which will deliver oxygen for her. If she needs to otake photo, she will remove her mask and stop breathing for a few seconds in order to look pretty without her mask on.
Unknown disorder trapped her inside a small body. Not exactly handicapped but unable to do many things normal 11 years old can do. Her mother can only teach her at home. She can write neatly, draw and color in rainbow colors, sing songs and memorise verses because her mother wants to keep her mind sharp.
At the age of 3, she nearly died, but her crisis led her mother and herself to know the Lord. Her father became more open. God's grace kept this family lovely and supportive of each other.
Want to cry many times when I see her. But how can i be sad when she is so positive. Her courage gave me courage. And gaver her mother and father courage. But I sense she may not outlive her parents. I guess this is also God's mercy. If she outlive them, who will care for her?
Jesus loves me this I know, for the bible tells me so..
